Tuesday, July 13, 2010

Looking Back

I'm feeling some gratitude today as I look back and see how far I've actually come. When you are in the middle of all this and you still feel crummy at times, it's hard to remember the successes. So today, I'm going to be thankful for all that I've learned and overcome.

Friday, July 9, 2010

The Whole Picture

So in dealing with chronic illness, I've come to realize that many of my body systems have run amuck. As I strive to move forward, it's difficult to keep my mind on the whole picture. I have found that something grabs my attention for a while but then I find that I have to step back again to look at everything. It's really kind of hard.

For example, it seems to be an ongoing game for me to try to balance the hormones, and I don't know if they will ever be totally balanced until I can get these darn infections out, but nonetheless, sometimes they are so off that I absolutely have to address them. When my thyroid or adrenals are haywire, there's no way my body can deal with detox or killing infections. It seems that I focus my attention on balancing those hormones for a time, but then I have to come back to addressing everything else again. It's really frustrating to know exactly what to do and when to do it, but I guess I'm learning as I go.

To help me with this process, I have found it really helpful for me to keep a record of my health issues and plan, to keep me focused on this big picture! Keeping records also gives me hope that I CAN get better even if it takes a lot longer than I would like.

Monday, July 5, 2010

Carrot, Anyone?

I recently moved across the country (a HUGE undertaking for a girl dealing with all this stuff) and I was going through my old journals today. I'm not sure if it was good for me. In fact, I read through an entry from about 5 years ago, when I was just fresh on this chronic illness journey. I had so much hope for a quick recovery back then. Ugh!

Sometimes it feels like hope is just a carrot dangling in front of my nose. But it has to be more than that. I have to believe that I CAN straighten all this out....thyroid, adrenals, total hormone havoc, leaky gut, fungal infection, lyme, chronic fatigue, fibromyalgia, MCS. Is it possible???????AAAAHHHHHHHH. All I can do is pray and hope and work hard, I guess.

Right now I am trying to get the vitamins in to prepare for a leaky gut protocol. I have such a hard time putting ANYTHING in my body so I have to go super, super slow. I have been able to get in the B12 and today I tried magnesium. We'll see how that goes.

Sunday, July 4, 2010

Finding Gratitude

So I'm over my pity party and I have decided to move past it for today...I'm not saying I won't be there again, of course, since this whole process is like riding waves. It seems to help me to let out my frustrations, then do my best to move to that place of gratitude.

Chronic Illness has a way of teaching you amazing life lessons in a very deep and personal way. Because I don't run around shopping everyday like I used to, I find these really sweet and simple moments when I can just read about, meditate on, and listen to the lessons I need to learn. And gratitude seems to be a recurring theme.

Saturday, July 3, 2010

Brown Rice and Health Coaching

It's so funny. My diet right now is pretty much brown rice....that's all I can tolerate! In fact, my chiropractor was even surprised when he tested me and found that I can't tolerate most foods, including vegetables. Of course, I know that fresh fruits and veggies, whole grains, and lean protein sources would be so good for me, but I'm stuck. Stuck with brown rice.

I found this little wellness coach on line today. I was all excited, because I'd like to enjoy a little upbeat coaching now and then, until I realized that she recommends not eating rice and salt. The salt has saved me with my poor adrenals and if I cut out the rice, then that would leave me with nothing to eat. Period.

Can we really coach each other??? I don't know. Maybe the best health coaching we can give each other is this:

1. Believe you CAN get better.

2. Pray for guidance and inspiration to know what to do.

3. Study and learn about what is out there.

4. Develop an organized plan and then do your best to stick with the plan. Pray for guidance to change things up when needed.

5. Be as patient as possible (at least try to fit patience in there between sobs) and never give up!

I'm not saying that we can't really help each other and I think it's great that people are trying to help others overcome chronic illness...it's just kind of complicated and never quite as simple as we wish it would be.

Hopefully one day I'll be able to eat food again, but until then, I'll have to keep my rice and salt on the menu. :)


Friday, July 2, 2010

Discouraged

Today I just feel so hopeless. The years of working through this are making me feel so overwhelmed and frustrated. I feel like I can't eat ANY food, go ANYwhere or do ANYthing without getting sick or having some icky, stinky flare up. It feels like my body is a burning fire of immune dysfunction and havoc and I try and try and try everything. I don't think there is a thing on planet earth that I have not tried and studied about. I work and work and pray and pray and try and try. Every time I try to take a step to improve, I just get sick. My body reacts to every single dang thing I put in there. It is so confused and mad at me. I am so sick of being sick. I am so sick of being sick. I am so sick of being sick. I don't want to complain, but my heart aches almost as much as my body. Please, bring me success. Please bring me success.
Please bring me success.

I feel like I know all the garbage that's in there and I know all the jumbly mess that needs organizing, and I even know all the great techniques for getting it all fixed but for some reason, my body has to make every single dang move I make so hard. Why can't I just take a nice little anti-fungal and "poof" the fungal infection is gone. Or why can't I just take a little thyroid medicine and "poof", the whole endocrine system works like a beautiful symphony? Why can't I take some simple little aloe vera juice and have it so warmly and lovingly coat my wrecked gut?

I'm sure that self pity is not where I want to stay, but this is where I am today, and I want to be honest. I pray that tomorrow I can wake up to some success and hope.

Thursday, July 1, 2010

Supplements, Supplements, Supplements

I have boxes of them. In fact, I have spent thousands of dollars on the process of trying to figure out what will work for me. I wish I could say that I just say a little prayer and then know exactly what to take, but it just hasn't been that simple. I have done muscle testing, MSA testing, and other energetic type testing but I still find that some things work and some things don't when they actually get into my body. I know that some things take time to get in and help, but it's hard to know, I mean it's just really, really hard to know what will help the healing process. And anyone who says otherwise is living some other reality than me. :)

In the process of trying to find things that help me, I have certainly found some amazing gems, but I would hate to even recommend anything right now, because I think we are all different. It is up to us to personally research the products, then do the best we can to take what we feel will help us.

I will say though, that I really don't think that there is any ONE company or any ONE product that would be considered the cure-all! I have to do my research, pray, then pick myself up and try again when I find that something doesn't work. If at first I don't succeed, I just try, try again!

The issue of paying for the supplements is another story. When I am better, I want to raise money somehow for people who are sick, because it's a dang stinkin' reality that it takes money to buy those supplements and pay for those holistic doctors. Ugh.